Hi Everyone
Claire here …

Scott is doing really well in himself which is a joy to see – especially as it seems today has been the toughest of this batch of 12 days now in hospital.

He has low energy (which he says feels like it comes from deep inside out to his muscles) …. and has had an upset tummy. They are treating the symptoms and say it is very much what is to be expected on Day +4.

It has been a more emotional day – with moments of choke up for both of us – the joys, the challenges, the unknowns and the realities all mixed together. The isolation and loneliness are hard for anyone but I think for someone as friendly as Scott it’s been even harder. He is remarkable in his strength of character and kindness towards me and others throughout.

Tomorrow is Day +5 and may involve two new dimensions.
1) The changing of his jugular catheter to the other side.(normal practice at 2 weeks).
2) Beginning to inject once a day with Neupegan for stimulating cell production and has worked well for him in the past.

Please can you pray for his tummy to normalize, for those kidneys to keep strong and all indicators to keep pushing in the right direction for healing and strength.

Thank you so much for your love and support.
Lots of love from us both. 🙏