Day +8 : Last of the Mohicans
October 31, 2024
Slow today with only one hand due to directional sensitivity of peripheral line drip – sorry!
Good day! Definitely making progress along the bottom of the barrel ☺️🤩🥳 (still hoping to have the energy to show you on graph because so difficult to explain in words alone!)
Slept medium which is not all bad…more importantly, feel MUCH BETTER than the last two days.
Kidneys doing brilliantly at 74, red bloods doing brilliantly holding their own, at this stage, still under fire. White cells successfully completely obliterated, flatlined at 0.10 ( but showing glimmer of hope as improve from 0.07 yesterday…couldn’t get much closer to 0.000!).
I did share some thorough pointers on best advise on how to proceed with funeral logistics with Claire yesterday in case the need arose – laughter and tears. So much love for each person as we imagined it all and the joy & fun, amidst tears, it could be.
But I feel full of INSPIRATION and excitement for 2025 and the years that The Lord may be giving me. I’m writing notes at night and can hardly believe the sense of determination, excitement and willingness I see in myself to do things more intentionally than ever. Seeing the vibrant multiplying churches ever relevant to the poorest in spirit, soul and body. Real Churches with Real Life In Christ bringing Real Change in the World, replicating exponentially, to see Nations being made Disciples. The salt of the earth and the light of the world. What a prospect!
Day +7 and I think I am halfway through the resuscitation phase. I will be proposing a change to the presented expectations of Stem Cell Transplant to include the word – ie not just engraftment, but Engraftment & Resuscitation 12 days. It’s just like nothing I ever faced before…a 12 round fight with the first 6 rounds tight ropes around your hands (but the crowd can thrown some punches for you!), second six rounds slowly loosing off…see how it goes! EEEiiisshhhh!!!
So it’s a HOPEFUL trajectory of
• 6 Days Hyper-Chemo
• 1 Day Rest and/or Dialysis
• 1 Day Infusion
• 12 D Engfaft/Resuscitation
• Discharge mid-Nov for 2 months home recovery avoiding infection
Just seen Dr Jasset – pocket-rocket female Haematologost who works with Dr Dave Brittan (Man’s man who I connect with massively) and they are covering for Ashmoore on leave. Tiny women but POWERHOUSE – I love her style, humility, condfidence, capacity. Muslim background and we are beginning to connect on broader issues which is fun.
She is so happy with infection markers coming down today (188 from probably a high of 250 yesterday) and VERY POSITIVELY the identification that it is probably come from the jugular port being in for an unusually extended length with dialysis risk etc. but wonderfully, appears to be a relatively minor infection identified through speedy growth of the blood cultures highly specialized and efficient labs on side here- wow. So – Dialing down on big guns antibiotics and remarking with more sniper-style tactics which is great. The care and attention has been remarkable.
My appetite is strong, my mind and spirit so alive. Body doing well, needing except use and Physio starts today in practice with Thera bands and all
On the right track and, I think, the first signs of a clear way through over the next 7 days…. Just my gut-feel.
You guys have been more than I could ever have asked for in terms of ‘community support’ – they talk of the importance of at least 3 people to truly hold you at heart through the length of the process. I am so thankful for the wealth of provision on this prayer, care and love group.
Much love and thanks,
Scott
PS:
Last of the Mohicans for a while 🥳🤣
Hair falling out on my hands, face peeling, chest going back to snake belly…but I thought I’d share this last moment of joy before dessert again ☺️😱