Day +5 : In the Fight
October 28, 2024
Woke later than before and I think the sleep was one of the better of the last 2 weeks – what a blessing.
Much encouraged by blood results just in. Gloriously, e-GFR has upticked to 71 which is feel beyond thankful for. Kidneys holding well with good urea and Creatinine levels (7.4 and 103) – what a relief and strength to have navigated to this point on DAY +5.
Feeling like I’m in the fight, from very close to the fire, in the trenches on frontlines. Fragile, vulnerable constitution like my overall energy can change at any time, waves of discomfort in forms of mild issues like toilet run or just needing to weather the sweat or diagphram spasm or whatever. They seem to have me in really good hands and I’ve been so thankful for how I’ve borne up so far.
Platelets 24 today and the faintest sign of uptick in neutrophils is so encouraging. All on track and platelets still on stand-by for emergency infusion if needed.
There we be more discussion about my ‘central line’ – the jugular port – with options of 1) refurbishing and remaining, or 2). being relocated on another part of neck, or 3) taken down to use a ‘peripheral line’ which is less invasive on the arm or somewhere. Pros and cons to all, and I just follow instructions 🤣🌟
I think that’s what I can update now. I’ll probably sleep again now 🫂😱🤗🫶🫶🫶
Huge love and thanks for the standing shoulder-to-shoulder every step
Much love
Scott